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Clinical Pathways for Cancer Pain Management
Brussels, 8th - 11th June 2006
 
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Statements

Participants' Statements at the P.A.I.N. 8 Workshop in Brussels

Dr. Mag. Klaudia Dsubanko-Obermayr
Clinical Psychologist in Landeskrankenhaus Graz-West (Austria)

"I hope the workshop will improve physicians', social workers' and psychologists' awareness of the psychological, spiritual and social needs of patients. This has a significant impact on how well we collaborate to support them and their families in dealing with illness and pain."

Dr. Heikki Hinkka
General Practitioner and Palliative Care in Kangasala (Finland)

"Working with colleagues from other countries, discovering similarities and differences, is very stimulating. These differences mean that we have to produce an outcome which is widely applicable, and the method we use means that we have to establish core principles, which is good."

PD Dr. med Frank Elsner
Department for Palliative Medicine at University Hospital of Aachen, RWTH Aachen University (Germany)

"To establish clinical pathways in cancer pain management for general practitioners is very important. We still have an undersupply in cancer pain management, even 20 years after the publication of the WHO guidelines. Simple clinical pathways might help to change this situation."

Luc Baert
Nurse in Pain clinic Algemeen Ziekenhuis St Jan, Brugge (Belgium)

"There are still considerable shortcomings in pain treatment which require multidisciplinary solutions. We must have proper communication between patients, relatives and all those involved in pain management. A good clinical pathway for cancer patients who have pain, with effective interaction between general practitioner, patient and pain specialist, promises the best practical help in my work as a nurse pain specialist."

Mr. Johan Holte
Physiotherapist in Yapton (United Kingdom)

"It is nice to work with other allied healthcare professionals in a multidisciplinary team, and I agree with most things that have been said. We each need to know our own strengths and weaknesses. I would really like to see the outcome influence general practice."

Dr. Hans Huisman
General Practitioner in Wijk bij Duurstede
(The Netherlands)

"Keeping discussions focused on the GP's daily routine and the 10-minute consultation is not always easy! I hope the consensus will prove to be of real practical value, as significant differences still exist between theory and practice."

Dr. Tim Hunt
Honorary Physician to H. M. The Queen and Professor Emeritus in Medicine at University of Cambridge
(United Kingdom)

"The company should be thanked for this initiative, which is attempting to take a nebulous subject and coerce it into a rational, coherent order. Multiple variables make this a difficult topic to 'tame'."

Margaret Kendall
Macmillan Consultant Nurse in Palliative Care in North Cheshire (United Kingdom)

"The greatest value of this exercise is that it is multidisciplinary - it enables participants to look at elements of pain control from a holistic viewpoint."

Dr. Aleksandra Kotlińska-Lemieszek
Palliative Care at University of Medical Sciences in Poznan, (Poland)

"As the methodology of the workshop is very professional, it encourages you to think of different aspects of pain management. The presence of people from other healthcare disciplines makes the discussion and conclusions more comprehensive. I believe the consensus will be a good basis for further discussions and unification of the language used."

Dr. Malgorzata Krajnik
Palliative Medicine Specialist, Chair and Palliative Care Department of Nicolaus Copernicus University, Medical College in Bydgoszcz (Poland)

"It is very useful to share knowledge and experience with people from different specialities. However, when devising these clinical pathways we really need more time to achieve consensus and obtain references."

Norbert Krumm
Nurse, Department of Palliative Medicine at University Hospital of Aachen, RWTH Aachen University (Germany)

"As a hospital nurse, I have problems in seeing things from the general practitioner's perspective. The pathways help patients but the differences between countries can be profound and I query whether it is possible to draw up a pathway for the whole of Europe."

Dr. Roar Maagaard
General Practitioner and Ass. Professor in Skødstrup (Denmark)

"One of the most difficult things about developing a pathway is to keep the content simple - specialists tend to become embroiled in details. Unless we keep the overall picture in mind the value of the work diminishes."

Dr. Jacques Meynardier
Pain specialist and Head of Pain Centre at Centre Oscar Lambret in Lille cedex (France)

"The problem for the GP is that it is difficult to determine whether a psychological factor is contributing to the patient's pain during a 10-minute consultation. This could be simple depression or an acute problem. The pathway that we develop should help to identify such factors."

Dr. Bart Morlion
Pain specialist and Coördinator Leuvens Algologisch Centrum at Universitaire Ziekenhuis Leuven ( Belgium)

"Pain is difficult to quantify and individual perceptions of pain vary considerably. This makes it difficult to achieve consensus, but equally makes this is a very good initiative which could be helpful for GPs."

Mag. Ass. Dr. Erwin-Horst Pilgram
Palliative Care at Universitätsklinikum Graz (Austria)

"I enjoy and support the opportunity of meeting with professionals from a variety of cultural and clinical backgrounds to discuss different points of view, based on individual experience. The methodology used is one means of trying to translate intuition into a tangible, practical form without missing scientific based knowledge."

Dra. Idalina Pires Miranda
Oncologist at Hospital de Sta Maria-Oncologia Médica in Lisbon (Portugal)

"Interaction between general practitioners, specialists and palliative care personnel is most valuable, but I feel the scope of this meeting is too large for just two days - the discussions become pressurised and there is insufficient time to think deeply about such complex topics. Maybe if there were some "home preparation work" before the meeting might overcome this problem."

Dr. Klaus Reckinger
Oncologist and Palliative Care at Krankenhaus Herne (Germany)

"It is interesting to see how treatment and practice varies, particularly with respect to existing guidelines. An ideal outcome is not possible - only a compromise solution - but we will get as close to it as we can, and this should be useful for GPs."

Walter Rombouts
Psychologist and member of Palliative Support Team at UZ Leuven (Belgium)

"Cultural differences put an interesting perspective on the way GPs work and the problems they address. Most participants were surprisingly positive about working with psychological support, and we should be able to provide a framework for that."

MD PhD Dirk Schrijvers
Oncologist and member ESMO, ZNA Middelheim in Antwerp (Belgium)

"I hope the pathway is a mean for GPs to help control pain as much as possible. GPs should also appreciate that not all cancer pain is controllable and that there are specialists to whom patients can be referred for pain control."

PD Dr. med Ulrich Schuler
Oncologist at Universitätsklinikum Dresden (Germany)

"It is important to keep pain treatment firmly on the agenda because oncologists are currently somewhat overwhelmed by numerous new developments in other fields of antineoplastic therapy. Also, communication about pain and symptoms should be discussed and taught with more emphasis during clinical training and continuing medical education (CME)."

Dra. Manuela Jesus Gonçalves daSilva
Physiotherapist at Instituto Português de Oncologia in Porto (Portugal)

"Hard work! There are good people from different specialities here, but some of the subjects really need more time for the consensus to be valuable."

Prof. MUDr. Peter Turcani, PhD
Neurologist and pain specialist in Bratislava
(Slovak Republic)

"The form by which agreement is reached is inconsistent, which could be a potential problem. Although the initiative is a very good idea for GPs, as they are the first line physicians, it could be affected by differences between individual countries."

 
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